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What Really Causes Autism? Thousands of Parents Still Blame Vaccines

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Posted on Jul 22, 2009

By Scott Thill, AlterNet

(Page 3)

Some help from outside the battle terrain could be on the way, in the form of increased government support from the Obama administration, which has promised increased funding for research, treatment, public awareness and screenings, especially of infants. That’s a marked difference from the previous administration, which was no friend to science or parents in general, if you ask Karp.

"Throughout the past eight years with Bush," he said, "the government was unwilling to advance the issue on the scientific agenda. And that too-slow response by the government and the medical community has made parents feel they had to speak out even more. And it’s not that pediatricians are bad people, but it is true that with tighter insurance reimbursements, we are trying to address health, nutrition and prevention all within the space of a short office visit. What has to give is the conversation. Doctors tend to say, ‘Look just trust me.’"

But that ship just doesn’t sail anymore. Especially in our digital age, where everything from publicly edited knowledge sites like Wikipedia to critical opinion publications like The Huffington Post, which has given opinionated figures like Karp, Carrey and more a platform to share and moderate their theories with sizable readerships, carry just as much weight as the family doctor, who most families don’t actually see more than a few times a year, and too quickly at that. The skepticism extends even to the science itself, which spends billions a year to tear apart a massively complicated human disorder only to often, as Wakefield allegedly did, reassemble it wrongly, and then ask for more funding. And while trial and error are endemic to science, parents of autistic children are exacting in the search for more triumphs and less error, trials and tribulations.

"There seems to be an endless cycle of press releases touting some newfound gene to blame, with each new study failing to replicate the last," argued Johnson. "To date, it’s fair to say that little of use has been found in over a dozen genome scans, and our understanding of how genes work is changing. Many diseases, like heart disease and cancer, are a combination of genes and environment: You’re born with increased risk, but your behaviors and exposures will be pivotal in determining whether or not you get the disease."  Wrangham agrees. "From SafeMinds’ perspective, there is a growing body of evidence and research demonstrating that autism is a disorder with a multifactorial etiology that is highly treatable with causation likely to be based on genetic susceptibilities and exposure to environmental factors. There is most likely a genetic predisposition which loads the gun, but ultimately, one or more environmental events are what pulls the trigger."

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Wrangham’s weaponry metaphor is apt, given that war terminology worked its way into every facet of the issue I ran into while writing this article. A spokesperson at the National Institute for Mental Health told me to contact researchers and scientists "on the front lines" on the battle against autism, while some parents of children with autism referred to themselves as "warrior moms." For all of their individual beliefs and theories, everyone contacted for this story seemed to be consumed with defeating an overarching enemy that simply escapes concretization.

Karp understands both sides of the mindset. "The battle concerns me as a physician," he admitted. "My life has been dedicated to helping families and children, and I have sometimes put my own family aside to do so. And I’m not alone, so that there are these concerns against the doctors is unfortunate. But parents feel abandoned by the doctors and the system. If their children are diagnosed with a disease, parents have to fight through a bureaucracy that isn’t made to make it easier for them. And while the whole system is stacked against them, they are dealing with the pain and sorrow of their children."

The way forward demands that the political, scientific and medical community and the paying public that it supposedly serves, including parents of children with autism, meet in the middle of the battlefield, shake hands and rebuild that inefficient system from the ground up. Along the way, it must admit that it is not simply vaccines laced with heavy metal, or excessive reliance on deadly prescription pills, or even some undiscovered gene that is the problem. All of those are merely symptoms of a greater disorder, which is the current relationship off all the involved parties, and how they perceive and profit from, unwittingly and otherwise, the data they receive. From pharmaceutical companies capitalizing on autism’s treatment all the way to the parents, as Leary says, just looking to justify their crappy child-rearing skills by doping their kids with pointless antidepressants, everyone needs a wake-up call. Especially since the culture-at-large has been additionally complicated by a dramatic rise in environmental toxicity and increasing distraction, wherein narcotic overstimulation and omnipresent media and technology have given humanity’s collective amygdalae a run for its hard-earned time and money.

"All life is a combination of nature and nurture, or in the current jargon, genetic and epigenetic," Karp concluded. "But there has definitely been a drive towards the mass-production mentality in our lives. We see that in our school system and in the medical community as well. Progress is good, but at a certain point you get to the wrong side of the line where you are missing time to sit and discuss things with your doctor, time to ask a few more questions and to be seen as the full person as you are. Sometimes we are throwing out the baby with the bath water."


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By takewarning, August 13, 2009 at 6:40 am Link to this comment
(Unregistered commenter)

Do You Want All This Pumped Into Your Or Your Child’s Body? And How Could You Believe It To Be Safe?

# Mercury (thimerosal)
One of the most poisonous substances known. Has an affinity for the brain, gut, liver, bone marrow and kidneys.  Minute amounts can cause nerve damage. Symptoms of mercury toxicity are similar to those of autism.

# Ammonium Sulfate (salt)
Suspected gastrointestinal, liver, nerve, and respiratory system poison.

# Beta-propiolactone
Known to cause cancer.  Suspected gastrointestinal, liver, respiratory, skin, and sense organ poison.

# Genetically modified yeast, animal, bacterial, and viral DNA
Can be incorporated into the recipient’s DNA and cause unknown genetic mutations.

# Latex rubber
Can cause life-threatening allergic reactions.

# Monosodium glutamate (MSG)/glutamate/glutamic acid
Being studied for mutagenic, teratogenic (developmental malformation and monstrosities) and reproductive effects. A neurotoxin. Allergic reactions can range from mild to severe.

# Aluminum
Implicated as a cause of brain damage; suspected factor in Alzheimer’s Disease, dementia, seizures, and comas. Allergic reactions can occur on skin.

# Formaldehyde (formalin)
Major constituent of embalming fluid; poisonous if ingested. Probable carcinogen; suspected gastrointestinal, liver, immune system, nerve, reproductive system, and respiratory poison. Linked to leukemia, brain, colon, and lymphatic cancer.

# Micro-organisms
Live and killed viri and bacteria or their toxins.  The polio vaccine was contaminated with a monkey virus now turning up in human bone, lung-lining (mesothelioma), brain tumors and lymphomas.

# Polysorbate 80
Known to cause cancer in animals.

# Tri(n)butylphosphate
Suspected kidney and nerve poison

# Glutaraldehyde
Poisonous if ingested. Causes birth defects in experimental animals.

# Gelatin
Produced from selected pieces of calf and cattle skins, de-mineralized cattle bones and pork skin.  Allergic reactions have been reported.

# Gentamicin Sulfate and Polymyxin B (antibiotics)
Allergic reactions can range from mild to life threatening.

# Neomycin Sulfate (antibiotic)
Interferes with Vitamin B6 absorption. An error in the uptake of B6 can cause a rare form of epilepsy and mental retardation. Allergic reactions can be mild to life threatening.

# Phenol/phenoxyethanol (2-PE)
Used as antifreeze. Toxic to all cells and capable of disabling the immune system’s primary response mechanism.

# Human and animal cells
Human cells from aborted fetal tissue and human albumin. Pig blood, horse blood, rabbit brain, guinea pig, dog kidney, cow heart, monkey kidney, chick embryo, chicken egg, duck egg, calf serum, sheep blood and others.

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By Rontruth, July 26, 2009 at 6:33 pm Link to this comment

Mark, Doug,
After my frustrated outbirst at Leary who seems to say that autistic people are lazy, stupid, blah-didi-blah, blab a little poop at them, making himself feel so bloated that his head must be near evisceration on to explosion (goodness, what emotional cartharsis this is, I thought that perhaps at least I could try to help the actual discussion just a bit,

As far as drugs are concerned, at this point, Depakote, P rozac, Respiradone (Respiradol), and Lorezapam PRN, along with tylenol and magnesium for the stomach, sometimes with a small amount of caffeine, seem to produce the overall best results.
A daily activity plan also helps. Regular physical exercise outdoors if the weather is good. Mentally stimulating conversation about the usually regular supjects (which are often limited, due to the part of echolalia (a normal part of the autistic syndrome) which means that repetition is necessary within the confines of those subjects.

There are no known causal factors because there is not enough epidemiological information available, and because the “scientific community” (oh, balther blaudity BS)is more concerned about producing medical results, including the so-called “studies” of anecdotal evidence, which ofen boils down to which anecdotal respondents a clinical study chooses to listen to (Uh. Who set up a “fund” to pay for the study?). Many of the trials end up bringing drugs to the medical establishment whose test results may well have been truly faulty.

If you go back into the history of the last 48 years, a shocking speech was made by President Dwight D. Eisenhower, Jan. 17, 1961. In it, after warning us all, especially his young successor, Kennedy, about the massive power of the military-industrial complex and it’s power over Congress, the newly open-eyed Republican described a scientific community that used room-filling computers to aid in scientific research.

He went on to say that the results of such research often depended on those groups and corporate entities that contributed to political campaigns. (Meaning, the political campaigns of candidates running for Congress.) I’m guessing that the same influence is being bought and sold today.

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By Mark E. Smith, July 26, 2009 at 5:52 pm Link to this comment

Thanks, Doug. I had a feeling that we’d find common ground.

I agree with the article that “autism,” like “cancer,” refers to a wide range of conditions which have much in common but may have many different causative factors.

The “first do no harm” PCRM approach of eliminating as many risk factors as possible and avoiding any additional risk factors when possible, makes sense to me.

Figuring out what is and isn’t a risk factor is beyond my capability, but I can, based on their past track record, sometimes figure out which sources are more credible than others. On that basis I trust PCRM a lot more than I trust the government or the pharmaceutical industry.

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By DougTheCoder, July 26, 2009 at 5:11 pm Link to this comment

Mark E. Smith,

I understood your point much better after your latest response:

“Many people believe that vaccines have something to do with autism. These vaccines were approved for broad usage. The approval process is, in many ways, deeply flawed.”

While I agree the approval process is not perfect, I don’t think it has anything to do with Autism. However, I respect your point as stated in the quote above.

And I agree with this wholeheartedly:

“As long as we cannot rule out pharmaceuticals as a possible cause, we probably shouldn’t rely entirely on pharmaceutical companies to develop treatments and solutions.”

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By gezelda, July 26, 2009 at 2:46 pm Link to this comment
(Unregistered commenter)

The ugly truth is that tons of mercury, arsenic and other heavy metals for years have been and are being dumped or insufficiently “stored” all over the world—particularly in third world countries where pollution standards are lower. Currently a search in this country is going on, to find a State or States that will accept further mercury pollution, and most States are resisting if not refusing—for good reason.

Where is the corporate responsibility for such dumping? Where is the governmental responsibility for control and legal restrictions to curb dumping? Where is the pharmaceutical responsibility for adequate testing and research? If the truth ever comes out, probably a lot of corporate carelessness will come to light.

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By Inherit The Wind, July 26, 2009 at 2:18 pm Link to this comment

I think words like “farce,” “inflammatory,” “diversionary,” and “irrelevant,” are coded ad hominem smears designed to stifle a dissenting viewpoint.
*********************************************

Compared to many of the battles I’ve been in here, including one under Ear to The Ground about the sting in NJ going on right now, these sound like love-taps in a VERY civilized debate!

No offense guys, but you are both behaving pretty nicely…not that I object to that!

If you can’t stand the heat….and right now you guys don’t have it higher than “warm”. 

You’ll know you’ve hit the limit when TruthDig starts deleting your posts, or eMails you a warning! smile

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By Mark E. Smith, July 26, 2009 at 2:00 pm Link to this comment

Dear DougTheCoder

You write: “1) Your article link only applies to approvals for human trials that are federally funded. The FDA has a separate and rigorous approval process for drugs and vaccines for broad usage.”

Then why have so many drugs that were approved for broad usage later found to be dangerous and recalled?

You continue: “2) The original article is about causes of autism. Your post’s connection to the original discussion is tenuous at best. Implying (which is what you were doing, whether you intended to or not), that vaccines were developed or approved for general use in a faulty manner by posting a link about the process for approving human trials by federally funded programs offers little to no substance to the discussion. Instead it simply creates confusion about the real issue.”

I thought there already was confusion about the real issue.

You continue: “The real issue is kids that suffer from autism. As of yet, we don’t know definitively what causes it. Let’s try to figure it out and develop some treatments.”

If you’re just looking for a scapegoat, how about second-hand smoke? Everything else gets blamed on it, so why not autism?

You continue: “Your posts are inflammatory diversionary tactics that deserve to be pointed out for their irrelevance.”

Ah. So while searing for the cause(s) of autism, we can eliminate the government drug approval process, as it is beyond reproach?

Many people believe that vaccines have something to do with autism. These vaccines were approved for broad usage. The approval process is, in many ways, deeply flawed. I think that might be relevant, but you are welcome to disagree if you think it couldn’t possibly be relevant.

I think words like “farce,” “inflammatory,” “diversionary,” and “irrelevant,” are coded ad hominem smears designed to stifle a dissenting viewpoint.

With regard to your autistic niece, you wrote, “Anecdotally, one thing that seems to have been the causal factor in her gradual improvement has been a change in diet…nutritionally balanced, gluten and dairy free and mostly organic.”

That’s exactly the sort of thing that the Physicians Committee for Responsible Medicine recommends. As long as we cannot rule out pharmaceuticals as a possible cause, we probably shouldn’t rely entirely on pharmaceutical companies to develop treatments and solutions.

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By heather, July 26, 2009 at 1:36 pm Link to this comment
(Unregistered commenter)

Well, I will clarify a little that the reports that I keep reading specifically look at the correlation between single vaccine type and autism or broad spectrum autistic disorder.

At no time would I go down the silly path of insane testing constantly to try to prove a negative. What I would ask for is tests that are more real life in the scenario to be tested - as in 10 and 100’s of vaccines introduced into a underdeveloped system. I have not found good testing on this situation at all. I have also not found good accounting of mycoplasm control in anything other than single vaccine single dose situations. No discussion of the compounded contamination problem of the batch or triple doses like DPT, MMR etc.

So, I guess my point in addition to not proving a negative is that swallowing the results oa test that say no correlation or causation when the tests themselves are situated to not even try to reproduce the actual situation cause me to raise my eyebrow.

I have been more interested in anitbiotic resistant strains in the veterinary context, but as the gardasil trials went forward I begin to tun my attention to this round of vaccinations that are dubious at best in terms of safety AND efficacy. Yet the literature an PR has made it sound like HPV and cervical cancer are about cured. And that is total crap, to put it in non scientific jargon.

I agree about meeting in the middle, hence I reiterate that using a club when a pat will do is jsut the wrong approach. And so so is using tests that don’t even approximate the living conditions they are attempting to elucidate.

So, on to another related idea, what can we the people do to address the problems of “environmental degradation” as a causative factor? Lead paint sellers will claim it is not them alone, plastics manufacturers the same, can liner businesses the same, but cumulatively they are all to blame!

Policy on vaccination and the general inability of the public to understand the science involved is a devastating effect. Policy on pollutants of any sort, when cumulative effects of pollutant load is NOT a field of inquiry as a general rule (and yes I generalize), is even harder.

SO - my middle ground is stop the insanity of over vaccinating because of the PR surrounding its successes. What would be the mandate vaccination crowd’s approach be?

best to all here,
heather

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By DougTheCoder, July 26, 2009 at 12:48 pm Link to this comment

Dear Mark E. Smith

1) Your article link only applies to approvals for human trials that are federally funded. The FDA has a separate and rigorous approval process for drugs and vaccines for broad usage.

2) The original article is about causes of autism. Your post’s connection to the original discussion is tenuous at best. Implying (which is what you were doing, whether you intended to or not), that vaccines were developed or approved for general use in a faulty manner by posting a link about the process for approving human trials by federally funded programs offers little to no substance to the discussion. Instead it simply creates confusion about the real issue.

The real issue is kids that suffer from autism. As of yet, we don’t know definitively what causes it. Let’s try to figure it out and develop some treatments.

Your posts are inflammatory diversionary tactics that deserve to be pointed out for their irrelevance.

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By Mark E. Smith, July 26, 2009 at 12:26 pm Link to this comment

DougTheCoder writes in response to my earlier post, “By your logic, treatment A is a farce. So, treatment B, C, and D must be farces as well since they went through the same approval process. Does that mean all treatments are farces since one treatment was approved erroneously? Does a faulty approval prove conspiracy or tragic fault with the entire system? Your logic seems to be the only farce.”

What the article I posted actually said was that the approval process is so faulty that the federal government’s own Government Accountability Office was able to register a fictitious scientific review board headed up by a dog named Trooper, and that they had gotten an actual scientific review board to approve a wholly fictitious product.

That does not say or imply that all scientific review boards are fictitious or that all approved pharmaceuticals and treatments are untested, dangerous, or nonexistent. All it says it that the approval process is so deeply flawed that, “Rep. Bart Stupak, D-Mich., chair of the House Energy and Commerce Subcommittee on Oversight and Investigations, said the findings raise serious questions about ‘the entire system for approving experimental testing on human beings.’”

If you wish to ignore those serious questions, you are free to do so, but others might want to take them into consideration.

I drew no conclusions, logical or illogical. I simply joked, “Okay, so tell me again what’s in those flu vaccines and how they got approved?” But it isn’t really a joke, since the vaccine companies have been granted immunity from lawsuits for any harm they cause. So if a vaccine saves a thousand children for every one it harms, and yours happens to be the one child that is harmed, perhaps incapacitated or made to suffer for life, or even killed, you cannot sue the company responsible.

It might seem like a worthwhile gamble to many, since the odds are that their child will be one of the majority who are saved rather than harmed. I’m just glad that my kids are grown and I hope that I won’t be forced to take the vaccine myself. I hope that it will be my decision to make, as I don’t want the government or the pharmaceutical industry making my decisions for me. I’m willing to gamble that if I do get the swine flu or the avian flu, I’ll be one of the majority who fully recover, rather than one of the minority who dies. Since it’s a gamble either way, I think the decision should be mine alone.

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By DougTheCoder, July 26, 2009 at 11:48 am Link to this comment

Outraged:
Maybe the government is working with major drug manufacturers to kill or disable America’s children for profit, as you imply.

Me. I’m not so cynical.

Mark E. Smith:
By your logic, treatment A is a farce. So, treatment B, C, and D must be farces as well since they went through the same approval process. Does that mean all treatments are farces since one treatment was approved erroneously? Does a faulty approval prove conspiracy or tragic fault with the entire system? Your logic seems to be the only farce.

Heather:
Your point about proving a negative is one I would like to reiterate. How many studies that are designed to determine if there is a link between autism and vaccinations does it take? Right now it’s a couple hundred to zero in favor of no link. What if it was 10,000 - 0? 10,000,000,000,000 - 0? Where’s the cutoff? Of course, you can never PROVE that there is no link no matter how many studies you do. But after a couple hundred studies come back with no link, it starts to look like there is no link. You can say that a couple hundred studies is not proof. You are right. But it is about as close as we are going to get.

Autism is a contention issue for reasons mentioned in the article. It’s time we stop bickering, meet in the middle, and try to figure how to solve the problem. Anecdote is not science and science is not anecdote. But both have their place in solving the problem. Let’s admit that, talk to each other, and work on a resolution.

I’ll start. My niece is autistic. She will be 4 this fall. She doesn’t talk or communicate with any coherence. She has a lot of repetitive motions. She has gone through various treatments and therapies over the course of the past two years. Anecdotally, one thing that seems to have been the causal factor in her gradual improvement has been a change in diet…nutritionally balanced, gluten and dairy free and mostly organic. I am not going to speculate as to why that might be helping her. But it does seem to have helped her. She has not been on any medications. There is no genetic history of autism. She leads an otherwise normal American life for a child of her age. She has a brother who is not autistic.

When I think about possible causes my brain hurts. There could be a trillion causes that I could speculate on. I just want something that will help her deal with her daily overstimulation and isolation. She is a wonderful child who seems to be at times suffering from her condition, attempting to self-soothe by withdrawing and doing repetitive tasks/motions. As her uncle, I want her to be able to enjoy life’s ups and downs like the rest of us. I understand that part of working a cure usually involves understanding the cause. But that is not always the case. Can we please just set aside the ridiculous arguments and start working on a solution together, recognizing that there is value in both anecdote and science?

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By Outraged, July 25, 2009 at 11:07 pm Link to this comment

Maybe there’s more to the story than meets the eye:

“In fact, the government has proved to be far more adept at handling the damage than at protecting children’s health. The CDC paid the Institute of Medicine to conduct a new study to whitewash the risks of thimerosal, ordering researchers to “rule out” the chemical’s link to autism. It withheld Verstraeten’s findings, even though they had been slated for immediate publication, and told other scientists that his original data had been “lost” and could not be replicated. And to thwart the Freedom of Information Act, it handed its giant database of vaccine records over to a private company, declaring it off-limits to researchers. By the time Verstraeten finally published his study in 2003, he had gone to work for GlaxoSmithKline and reworked his data to bury the link between thimerosal and autism.

Vaccine manufacturers had already begun to phase thimerosal out of injections given to American infants—but they continued to sell off their mercury-based supplies of vaccines until last year. The CDC and FDA gave them a hand, buying up the tainted vaccines for export to developing countries and allowing drug companies to continue using the preservative in some American vaccines—including several pediatric flu shots as well as tetanus boosters routinely given to eleven-year-olds.

The drug companies are also getting help from powerful lawmakers in Washington. Senate Majority Leader Bill Frist, who has received $873,000 in contributions from the pharmaceutical industry, has been working to immunize vaccine makers from liability in 4,200 lawsuits that have been filed by the parents of injured children. On five separate occasions, Frist has tried to seal all of the government’s vaccine-related documents—including the Simpsonwood transcripts—and shield Eli Lilly, the developer of thimerosal, from subpoenas. In 2002, the day after Frist quietly slipped a rider known as the “Eli Lilly Protection Act” into a homeland security bill, the company contributed $10,000 to his campaign and bought 5,000 copies of his book on bioterrorism.”

Makes me wonder…..hmmmm.

http://www.globalresearch.ca/index.php?context=va&aid=14510

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By samosamo, July 25, 2009 at 9:12 pm Link to this comment

By Rontruth, July 24 at 1:25 pm
““As parents of an adult autistic human being, we do the extra fine things each day for him, and to the extent possible, with him. He is unable to remember many things because of his limited speech, which as all you brainy imbeciles might know, or maybe not, has internal as well as external interrelated features.
****************************************************

I am not familar with autism so I can’t speak from experience(though I belive myself to have some degree of ADD, due most probably to the fact my mother both drank and smoked during my gestation and my other brothers as well) but I think I would not be far off the mark when I say that allowing corporations to pollute the environment with all the chemicals that we the people allow them to keep dumping into OUR environmental habitats could most probably have a part in this and many other myriad problems inflicting any living thing on this planet with even the smallest amounts being able to disrupt normal life functions, slightly or dramatically; try a check on the homind species way back into the past to see what paleoanthropolgists have detected in the ‘historic’ peoples versus the ‘modern’ peoples(agricultural age & the industrial age) and the dieases prevalent in those groups.

I have found in my readings that there is a noticable difference when only researching the information on diets, so yes, I will point a blame and I feel it has a lot of merit to it.

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By Inherit The Wind, July 25, 2009 at 8:12 pm Link to this comment

The reason we vaccinate is simple:  The number of people saved from the disease is ALWAYS on the order of 100:1 (usually more) to those who die from the vaccine itself.

The odds are something like 300:1 (I don’t swear to that number) that your child will have a DANGEROUS negative reaction to the pertussis vaccine—but his/her odds of getting whooping cough become terrifyingly high if they don’t have it.  In Europe, whooping cough has been on the rise due to parents refusing that vaccination.

Consider the Spanish Flu epidemic of 1918—it killed 50 million people, making it the most deadly disease over a set period of time ever.  Had there been a vaccine that 1 out of 100 people died from and world-wide inoculation, that means 49,500,000 would have survived, and 500,000 would have died. 

Which would be preferable?

Meantime, I live always with the fear in the back of my mind that my children at some point in the future will be exposed to Smallpox and not have any defense against it.  I never knew, until my first child was born, they had stopped the vaccinations. I still have my scar, and I was re-inoculated in 1971, but I had no reaction as I was still immune.

Rontruth’s post spells it all out—Ron, you have my sympathy—I know a few people with autistic kids, from low-level functioning to high level, able to attend public high school without too many problems. My best wishes to you.

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By Mark E. Smith, July 25, 2009 at 5:57 pm Link to this comment

This is from the summer 2009 issue of “Good Medicine,” published by the Physicians Committee for Responsible Medicine, and although it is on their website (second story on the linked page), I can’t find any more about it:

Approved… But It’s Fake

The Government Accountability Office found major flaws in the system for approving medical research. In a disconcerting test, the agency won approval for a fake product to be used in testing and registered a fictitious medical review board.

Any drug or device used in federally funded testing on humans must be approved by an institutional review board of scientists. The Government Accountability Office (GAO) was able to register a fictitious review board—headed up by a dog named Trooper—with the Department of Health and Human Services.

In a separate test, a real institutional review board based in Colorado Springs, Colo., approved a medical protocol that would have required doctors to pour an entire liter of a GAO-fabricated product into a woman’s stomach after surgery.

Rep. Bart Stupak, D-Mich., chair of the House Energy and Commerce Subcommittee on Oversight and Investigations, said the findings raise serious questions about “the entire system for approving experimental testing on human beings.”

————————————————-

Okay, so tell me again what’s in those flu vaccines and how they got approved? ROFL

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By heather, July 25, 2009 at 3:27 pm Link to this comment
(Unregistered commenter)

wow! angry people abound. people with marginal scientific literacy on both sides of the debate still debate. people who want to claim “science” on their side have little to say about the actual science but like to cite reports I am fairly certain that they have not read.

It would be great to say that vaccines don’t cause autism. It is better to say that there is no established link between vaccines (especially in single dose/single type) and autism. But the problem remains that there is no scientific proof that vaccination regimens and mycoplasma contamination and yada, yada, DONT cause autism. Hard to prove a negative, neh?

So, with all the shits, fucks, stupids, and other palaver, can there at least be more thought on the framing of arguments and the facts? Not the reports, but the facts. And that means contextualizing and sourcing the reports - from all sides.

I think the eradication of smallpox is pretty much one of the wonders of the world. I also think that damning polio into the netherworld is awesome. I also think that washing your hands and eating right are better approaches to whooping cough than a vaccine. People who use this illness as an example are too stupid to argue with. Try looking at mortality rates and other conditions.

Vaccines are awesome for many, many reasons.  But not all vaccines. Try treating illnesses appropriately - kind of like not using a wrecking ball when a hammer will do. Vaccinating against pertussis is asinine and not on the same level as vaccinating against smallpox.

And all of this regardless of the links or non-links to autism.

Please wash your hands.

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By Rontruth, July 24, 2009 at 10:25 am Link to this comment

As the father of an autistic son whom my wife and I take good care of, the use of the word, “shit” in the article, therefore gives me the right to use it in return: The doctor is one A-hole who is full of it. He has a form of constipation that lends credence to the term “he needs an enama.”

Autism, as a disorder, is often complicated by retardation in varying degrees. Blaming anyone, or anything for it is escapism of the most destructive kind. Most of those who blame something, someone, anyone or anything, are looking for a way to say “I AM NOT TO BLAME. They are also attempting to say, “Why do I have to assume responsibility for what happened to this person since I am not to blame?”

They transmit this to politics in the form of “let’s just do the minimum, make sure they have a bed to sleep in, food to eat, basic medical care, but nothing more. Afterall, they might not be able to fully appreciate the finer things in life, anyway.”

As parents of an adult autistic human being, we do the extra fine things each day for him, and to the extent possible, with him. He is unable to remember many things because of his limited speech, which as all you brainy imbeciles might know, or maybe not, has internal as well as external interrelated features. The lack of “connectedness” (Wow. What a psdeudo-sophisticated term), meaning neuro-synaptic malfunction, in and between Wernickes and Brokau’s centers in the brain and between them both and the anterior (frontal) cortex, are the main causal problems. All the other deficits are variously related.

Specifically, the causes of autism; why the above and associated problems occur, no one in hell has any fricking idea, so just let it rest that, even if someone thought to study the water people drink, the highly saturated meat fats (people just luv that red meat. Right?) or the vitamins they take, or whether their mommy carried a gene that just somehow got transmitted through wonderful sexual activity to their offspring, is NOT and should NOT be the issue.

As Mary Travers of Peter, Paul and Mary sang about in 1967, “In the days of long confessions (and we have some long-winded TV preachers whose mouths are open while their flies are also open), -we cannot mock the soul. When there’s too much of nothing (and the upper income groups love doing nothing, and more and more of it, while paying less and less, relatively speaking, for it), no one has control.”

And, control is what the selfish really have in mind when they pander unproven half-truths and outright lies about someone or something to blame for autism.

As some Christian said to this Messianic Jew who forgot to wear his kippah to Church when talking about a different subject, “Well, we need to ask ourselves, what would Jesus do about it?”

What is the answer?

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By DougTheCoder, July 24, 2009 at 8:42 am Link to this comment

I wholeheartedly agree with this:

“there is a growing body of evidence and research demonstrating that autism is a disorder with a multifactorial etiology that is highly treatable with causation likely to be based on genetic susceptibilities and exposure to environmental factors.”

and this:

“If their children are diagnosed with a disease, parents have to fight through a bureaucracy that isn’t made to make it easier for them. And while the whole system is stacked against them, they are dealing with the pain and sorrow of their children.”

This is the answer:

“The way forward demands that the political, scientific and medical community and the paying public that it supposedly serves, including parents of children with autism, meet in the middle of the battlefield, shake hands and rebuild that inefficient system from the ground up”

That’s my opinion…as stated very well in the article.

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By Becky, July 24, 2009 at 6:45 am Link to this comment
(Unregistered commenter)

“science has demonstrated that vaccines aren’t related to autism.”

This is the typically overly simplistic manner in which research studies are incorrectly referenced. This statement is, on its face, incorrect.

“Science” has not “demonstrated” that.  The correct statement is that the majority of studies done to date have not shown a definitive link.  This obviously does not equate to saying not mean theyDOES NOT mean they have *proven* that they “aren’t related,” in any way, ever, which any writer worth his salt knows full well. Very disappointed to read such shoddy remarks on TruthDig.  The author could have made his point without such lazy remarks.

My mainstream doc says this:  For some kids, who are predisposed (weak immune system or a plethora of other ‘weaknesses’ in their neurology), it is NOT GOOD to give them whopping doses of vaccines all at once when they are brand new little babies.  How do you know who is predisposed?  You don’t.  What we did was hedge our bets. I vaccinate my daughter.  But I insisted on no mercury (no amalgam fillings in her teeth either).  I insisted on ‘spreading them out’ over time——not all at once.  Costs a bit more, but made us feel safer.  My kid is very healthy so far, I doubt she is predisposed to a neurological problem.  But some kids are.  It’s just not as simple as pro-vaccine or anti-vaccines.

This simplistic article does a disservice to the complex and interesting debate over giving little kids big doses of vaccines when they are small babies.  It really bothers me when writers like this one, and paternalistic, well-meaning docs dismiss parental concers as somehow overwrought, that they are all basically silly people looking for answers to something they can never know (what caused their kids neurological problems).  Parents are the direct observers and should be respected and listened to.  Parent groups, docs, writers and researchers can sort through these anecdotes and give some more weight than others I guess, but to dismiss all of the direct observation as emotionally tainted and therefore not even worth taking into account, is wrong.

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By Kesey Seven, July 23, 2009 at 2:36 pm Link to this comment

Uh, Denis Leary is a comedian. You’re doing him a favor, you’re lending him credence, you’re helping him financially by mentioning his work.

Did you see what happened to David Letterman’s ratings after Palin picked a fight with him? 

If Leary reads your article he will fall on his back with laughter, rub his belly with joy, click his heels with glee, kick out his legs in ecstasy, and thank you from the bottom of his clogged heart. 

As someone who has a close family with Asperger’s Syndrome, I can sincerely say the rest of your points are valid but starting out as you did casts a pall over the report.

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By Frikken Kids, July 23, 2009 at 8:08 am Link to this comment

How are we supposed to take an article about autism seriously when it mentions Andrew Wakefield’s study that ignited the autism-vaccine storm without mentioning that Wakefield’s study has been thoroughly discredited?  It has been shown that he simply made up data and lied about the children he was studying and that he was paid to conduct the study by lawyers representing a group of parents who suspected vaccines caused the autism of their children.  He has no credibility whatsoever except amongst those desperately clinging to the ridiculous idea that vaccines harmed their children. 

Also, what about the recent ruling when the very best of thousands of autism-vaccine cases (chosen as the best by the claimants and their lawyers) were rejected for not even approaching any standard of proof that vaccines caused harm? 

This is just another is a too long stream of articles purporting to ask what causes autism while in fact pushing the blame mainly on vaccines.

One other thing, I swear more than anyone I know but using “fuck” in an article such as this takes away from the work.

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By photoshock, July 23, 2009 at 6:19 am Link to this comment

To nestoffour: I know of a family of five, count them five autistic children. They range in symptomatic problems from the high end of the spectrum to extremely autistic.
How, I ask myself, does this mother survive the day, let alone the teenage years of a child diagnosed with Asperger’s syndrome?
It is amazing that the medical community, including the ‘pharmaceutical’ industry, refuses to study their own products to the point that is sufficiently viable, so that it can quell the fears of parents and doctors in their quest for answers and healthy children. We must remember that this is our future we are endangering with the cavalier attitude that we do not have to do the most extensive and safest studies, to make sure that we are not making our future an ending within the next few years.

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By C. Curtis Dillon, July 23, 2009 at 12:40 am Link to this comment
(Unregistered commenter)

This problem, like childhood asthma and other conditions, points to something seriously wrong in our environment.  We have (or the chemical industry has) been pouring a thick soup of chemicals into our air, water and soil for a long time.  The pharma industry similarly has been pushing an ever increasing list of pills at us so they can increase their obscene profits.  They all perform the required tests to show what the hazards of their new chemical or drug are but the do not (for obvious reasons when you consider the huge and growing number of chemicals/drugs in our environment) test the potential cross-interactions with all the existing pollutants in our ecosystem.  It may be a single chemical that triggers autism but it may also be something like PDBE exposure + a vaccine that causes the condition.

I was around when the first Polio vaccines came out and they eliminated one of the worst scourges imaginable.  They told us side effects were possible but everyone agreed that avoiding the vaccine was not an option.  The success of that campaign encouraged others to develop vaccines against many other diseases and, for a while, they were highly effective.  Childhood diseases were significantly reduced.  However, I wonder if the new vaccines (many developed to extend patent protection for the pharma company I would bet) are in the same category.  I would doubt the companies did extensive analysis of the side effects and, if any did occur, were they written off as insignificant or coincidental?  That seems to be the new model of drug development these days.

I would guess avoiding vaccines is not an option.  Different populations are at different risks from contracting some diseases and that might argue against following the Amish model.  Inner city kids have far more contact with disease carriers than an
Amish kid does and they need to be protected.  We absolutely need vaccines but our pharma industry needs to be far more aware of and reactive too issues around side effects.

In the end, we need to take back control of our environment from the chemical and pharma industries.  The prevailing business model seems to be throw it out there, deny there are any dangers and then, with a weak apology, withdraw it when the evidence becomes overwhelming.  By then the damage is done and little can be done to correct the “mistake”.  We should not be guinea pigs for others’ profits.

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By Outraged, July 23, 2009 at 12:12 am Link to this comment

Re: steele505

Your comment: “5. The government’s tracking system for vaccine injury (VAERS) cannot assess causality and there is under-reporting to VAERS. Thus, there is no real paper trail for determining how many children are adversely affected by vaccines, or even if the vaccine caused their problems or not. To me, this is inexcusable. If the government wants me to use these products, it needs to know. Here again, it seems the medical community is in no hurry to protect children from vaccine injury, dismissing problems as “coincidence” all too often.”

While I agree with you for the most, it is important to distinquish CORRUPTION IN GOVERNMENT from government itself.  I have read many books and articles regarding vaccines through the years and did not vaccinate my own children in their infancy.  Like you, I would like the FACTS and not the rhetoric.  As my children grew there came a time wherein I chose to vaccinate them against specifically Tetanus, for several reasons including environment, ability to discern the TRUE effects of the vaccine, ablilty to “paper trail” the manufacturers….etc.

Also like you, I find NO EXCUSE for the lack of studies and accurate information regarding vaccines.  I have experienced much dogma regarding the vaccination of children and childrens medicine in general, a slippery slope indeed.  Having come from a large family, I’ve heard the most outrageous claims and have been called to the fore many times regarding ideological mantras spewed by emergency room doctors regarding the “well-being” of many relatives.

Something reeks to high heaven here.  I have argued (more than once with emergency room doctors) that A SICK CHILD should not be suddenly and flippantly vaccinated because their viral symptoms happened to flare Sunday afternoon when the ONLY place (at least then) was the Emergency Rm. for needed meds. and care.

I have also found much discomfort with the realization that SIDS happens most often during the fouth month of infancy, a month that just happens to coincide with the second set of vaccinations.  I don’t KNOW, because studies have not be forthcoming regarding this possible link or non-link. However, it certainly leaves a discerning parent to come to the determination of “better safe than sorry” especially IF the child had had a reaction to the first vaccination.  This is exacerbated by the fact that many first time parents (rightfully so) are NOT as intuitive as experienced parents with their newborn child. 

It is common med. knowledge that as allergic reactions go, the first encounter will “make you ill”.... the second, could kill you.  This too, is pause for consideration.  Yet, many doctors completely IGNORE parents’ summations of events, family history and medical pertinence and “go ahead” with SECOND vaccinations even AFTER warning signs have been verbalized and attempts to document symptoms are patently disregarded.  Some doctors completely OMIT intial reactions from their records altogether.  My premise would be that this amounts to somewhat of a “safe-gap” measure should any troubles arise.

Vaccinations do change periodically, for the good or bad still appears to be non-researched, at least CONCLUSIVELY.  Additionally, some time ago….oh, twenty years or more we had the scandal of pharmaceutical companies shipping “bad lots” of vaccines to undeveloped countries and charging the U.S. Government full price (the vaccines were worthless in America).  This situation didn’t bode well for Americans putting their trust in these same manufacturers. Regardless, profit in healthcare is a recipe for DISASTER, and there are NO ifs, ands or buts about it.

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By garyrose66, July 22, 2009 at 11:30 pm Link to this comment

Why not examine environmental toxins? For example why not follow up strongly on this promising lead: A relatively unknown, but very significant source of neuro-developmental toxins to children are the chemicals added to bedding, pillows, cribs, to meet excessive and unnecessary flame retardant standards.

These chemicals which have not been studied well enough to prove their safety are PDBE’s - polybrominated diphenyl ethers.
In dozens of animal studies, these fire retardants have been shown to harm reproduction and scramble brain development. Studies are underway to determine if PBDEs are contributing to increases in autism, hyperactivity, birth defects, infertility, diabetes and obesity in people. PDBEs kill house pets through kidney toxicity.

They are used because politicians blindly pass laws requiring flame resistance, at the specific bidding of fire fighter groups who, with good intentions want to reduce fire losses to people and property, but without regard to risk management principles.

These flame retardant laws only slightly reduce the number or severity of fires caused by smokers passing out with lit cigarettes falling onto furniture, if at all.  And the laws fail to require flame resistant only if it can be done safely, and without environmental risk. 

As a result, manufacturers just slather on the cheapest most readily available functionally flame retardant chemical (PDBEs) into the upholstery fabrics of bedding and furniture to meet the requirements.  Amazingly, these laws often specify flame retardants particularly for infant bedding, without regard to the balance of fire risk in infant bedding compared to the health risks to the infant from exposure to PDBEs. 

The potential PDBE toxicity issues are, naturally, tamped down by the chemical manufacturers and their public affairs front, the American Chemistry Council (formerly known as the Chemical Manufacturers Association). This is the familar paradigm: when there is no glaring scientific study demonstrating a highly significant, easily seen cause and effect with minimal exposure leading to large adverse effect - then nothing can be done to stop it.

Without a scientific “smoking gun” the chemical manufacturers can put the chemicals into commerce first, and require the public (ie government) to prove they are dangerous before they can be taken out of commerce.

Meanwhile we have, within the recent past developed an enormous bio-burden of PDBEs in our personal living environments.  More importantly, the rise of PDBEs in our kid’s bedding, seems to mirror the time line in the rise in autism.

PDBEs are bio persistent and flake off fabric from bedding and furniture and become part of the dust of the house and are ingested by children and pets at a higher rate than adults. On average, dust in California homes contains 10 times the PBDEs found in dust from other states and 200 times the amount in houses in Europe, according to a new study from the Silent Spring Institute.

Worse, Californians have twice the level of this fire retardant in their blood as do people in other states. A recent research report by the nonprofit Environmental Working Group showed that American toddlers have, on average, a level of fire retardant in their bodies that is three times higher than that found in their mothers.

This issue needs to be brought to the attention of the public…especially those who are looking for an environmental causation element in the rise of autism.  It may not be the complete cause of all cases, but it could certainly be involved with some, if not many of the cases.  And it seems far more logical to investigate these types of significant environmental exposures rather than chasing the tail on vaccines.

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By KDelphi, July 22, 2009 at 10:32 pm Link to this comment

It is probably true, that nature and nurture combine in autism,(63-98% chance in separated twins, depending on study) but,if you have ever worked with autistic kids or adults, you wil have no doubt that there is a neurological cause at the root—either genetic or environmental, or both. True, all people are different, but autisms exhibist a very marked and continual set of repetitious symptoms that “bad parenting” would be extrenely unlikely to produce. The sterotypy of the movements , the rare but formidable, ‘savant” of many autistic people brains, (formerly called idiot savant—“good with numbers” “good on piano” etc. although “Rain Man” was a real stretch) and the lack of focus are not just AADD.

I know of no pill or pharmaceutical that is help, in any way, in treating autism.

If there is a shadow of a doubt, considering how pervsive the disorder is,take thermerosal ( and all mercury ) out of vaccines, for christ’s sake. As far as I now, there have been no real double blind studies of vaccinated vs unvaccinated, partly becaue most countrties now require vaccination. I am not saying to not get kids vaccinated…I am saying that parents deserve a better explanation. Science has “tested” stuff like this on people for years..the mistrust didnt just come out of the air.

Something is causing the huge rise in autism rates, and, while it is true that there is more ‘awareness” and , probably, therefore, diagnosis (Asperger’s alao—which may or may ot exist), there is no doubt that there is an increase. Considering how life-altering the diagnosis is,I think that the scientific comunity owes us—and kids—better.

BTW—the “refrigetator mother” idea was advanced by Bruno Bettleheim (a strict Freudian, more prone to blaming mothers than Freud himself!!)and has been dicredited by anyone with a brain. He was an Austrian PhD whose only reasonable contribution to psychology could be said to be mileu therapy (basically, a closed environmental system), and the symbolism of unconscius role-modeling. (If you ask me, many had advanced his theories in better ways before he did)True , children with problems often do better in a group setting with professionals but it is not usually because they are not around their mother..He opened a “school” for these children of horrible mothers (now word about fathers really), called if I recall correctly, the Golden Door, where a “child’a face would light up, seeing the first glance of what it was like to be accepted.” Hogwash.
He comitted suicide in 1990, I believe.

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By nestoffour, July 22, 2009 at 10:19 pm Link to this comment

JayZee,

Here is an excerpt from the investigative article “Deadly Immunity” by Robert Kenedy, published in 2005 (http://www.commondreams.org/views05/0616-31.htm):

“As the federal government worked to prevent scientists from studying vaccines, others have stepped in to study the link to autism. In April, reporter Dan Olmsted of UPI undertook one of the more interesting studies himself. Searching for children who had not been exposed to mercury in vaccines—the kind of population that scientists typically use as a “control” in experiments—Olmsted scoured the Amish of Lancaster County, Penn., who refuse to immunize their infants. Given the national rate of autism, Olmsted calculated that there should be 130 autistics among the Amish. He found only four. One had been exposed to high levels of mercury from a power plant. The other three—including one child adopted from outside the Amish community—had received their vaccines.”

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By steele505, July 22, 2009 at 9:09 pm Link to this comment

This article purports to give an even view, but I suggest you read the following to get the real stuff on why people are opposed to vaccines.

National Vaccine Information Center at
http://www.nvic.org/

and
http://www.vaccineawakening.blogspot.com/

and the following from
http://vaccinesandmychild.blogspot.com/
:
Questioning Vaccines in a Nutshell
If I could sum up in a concise list some of the reasons I don’t have absolute trust in the vaccine program anymore, this is it. I may add to this list in the future, but for now, this was a quick list I jotted down to highlight my major concerns.

1. There is too much money at stake for pharmaceutical companies, which lobby Congress and are intricately involved in the nation’s public health bodies (According to a 2/23/09 article in The Wall Street Journal, vaccines will generate $21.5 billion in annual sales by the year 2012). They also have an unsettling amuont of control over vaccine studies in scientific journals, as recently reported in the British Medical Journal.

2. Thimerasol (mercury) was used in vaccines for years (and is still in the flu shot, as far as I know) and was given to children in their shots sometimes in levels over 100 times the EPA allowable “safe” limit. The government denies that there is any link between neurological disorders and the neurotoxin mercury given to children in shots. (Read the book Evidence of Harm by David Kirby for the story of parents who discovered their kids were poisoned by mercury and have been ostracized by the medical community.)

3. There exists much information about harm from vaccines in medical journals, but we, the public, don’t have the privilege of hearing about it like we do for most other pharmaceuticals.

4. The government had no tracking system in place to monitor adverse events from vaccination until parents of vaccine-injured children lobbied for it (The National Childhood Vaccine Injury Act of 1986). See the “History of NVIC” section on this page for a brief summary.

5. The government’s tracking system for vaccine injury (VAERS) cannot assess causality and there is under-reporting to VAERS. Thus, there is no real paper trail for determining how many children are adversely affected by vaccines, or even if the vaccine caused their problems or not. To me, this is inexcusable. If the government wants me to use these products, it needs to know. Here again, it seems the medical community is in no hurry to protect children from vaccine injury, dismissing problems as “coincidence” all too often.

6. After recognizing a biological marker (a mitochondrial disorder) that supposedly set Hannah Poling up for regressing into autism after vaccination, the CDC was not concerned enough to start screening children for mitochondrial disorders. They said this would be risky, expensive and would raise “ethical questions.” To me, this says that protecting kids from vaccine injury is not as important as protecting the vaccine program. Autism is also risky and expensive, and it raises ethical questions for me regarding why the CDC would rather risk my kid getting autism than risk not vaccinating. (See “CDC Responds to Questions About Vaccines,” March 28, 2008)

7. The government has never done a comprehensive study on the overall health of vaccinated kids versus unvaccinated. Yet a parents group, Generation Rescue, conducted a survey of 17,674 children in California that found that vaccinated boys compared to unvaccinated boys were 155% more likely to have a neurological disorder, 224% more likely to have ADHD and 61% more likely to have autism. Though this can’t substitute for in-depth scientific studies and cannot point to definite conclusions, I wonder then, why won’t the CDC take on the responsibility of doing this? We need answers. I think the CDC is afraid that they will find the same things, or worse, and have to deal with answering for a public health disaster.

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By Inherit The Wind, July 22, 2009 at 8:33 pm Link to this comment

Gee, don’t you know? It’s a conjoined plot between MOSSAD and the NSA.

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By Les, July 22, 2009 at 8:31 pm Link to this comment
(Unregistered commenter)

The research clearly says that type 1 diabetes in either the mother or the father’s family is a risk factor for autism. For some reason the mother is singled out in the mass media although this is not what the paper said. Increasing paternal age is a major risk factor for non-familial autism. Vaccines are implicated in mitochondrial autism. There are a number of causes.

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By JayZee, July 22, 2009 at 7:56 pm Link to this comment

Speaking of old religion…What’s up with that Amish anomaly?

I personally would love to see the “scientific method” used to test a group from the ever growing population of un-vaccinated children in the US compared to a group of vaccinated children.Short and long term for both autism and ANY immunopathology.

Let the chips fall.

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By MeHereNow, July 22, 2009 at 7:40 pm Link to this comment
(Unregistered commenter)

Not only is Jenny McCarthy an idiot,she’s a dangerous idiot.because of her,thousand of children who would have been protected against myriad disease will now contract those diseases,and many will die.

need proof.Whooping cough,which had been pretty much eradicated,has made a comeback,and is at almost epidemic numbers.Why,because dumbasses like Jenny McBimbo have been using their status to lie,to fear-monger,and to smear.

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By tropicgirl, July 22, 2009 at 7:25 pm Link to this comment

This is a terrific blog. It is so important. For starters, I want to say that the “vaccinated public” serves the purpose of testing a myriad of things (in vaccines), on unsuspecting, or scared poopless people (swine-bird-whatever-flu). The rest of the ingredients are just dangerous, expedient things. Unfortunately, in this country,( I do not know about others), there is a long history of this type of “testing” or “experimentation” on people who do not suspect. Prime candidates have been (and surprisingly, still are) minorities, old people, children in the school “system”, prisoners, servicepersons, blacks, orphans, and so on. You get the picture. Some of these vaccine-makers get sick of radicals protesting abuse of animals, and the scrutiny involved. So, they just find people. For some reason it lags in sympathy or awareness with the public, just a little, but it shouldn’t.

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By Fat Freddy, July 22, 2009 at 6:51 pm Link to this comment

What has happened is that, in the autism debate, anecdote has replaced science in parents’ minds.

This is just an offshoot of the old religion vs. science debate. The problem is most people don’t understand “The Scientific Method”.  A viable challenge or argument should not be mistaken for what is accepted by the scientific community as “truth”.

http://en.wikipedia.org/wiki/Scientific_method

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